MARBLEHEAD – When you walk in the Gilligan residence on Jefferson Street it looks like any other normal family setting.Jackson, 10, is sitting at the island in the kitchen wearing sunglasses emptying out his folder from school; Allison, 6, is sitting at the same island eating a bowl of pasta for dinner; and Karlyn, 7, is in her room reading a book out loud; the oldest child, Alexandra, 16, like most other teenagers is not around for suppertime.For parents Patrick and Amy Gilligan, reality could not be further from normal.Jackson suffers from autism, Karlyn has cystic fibrosis and Allison, who had lost the function of both kidneys, was on dialysis for a year before receiving a kidney transplant from her father – who says she will more than likely need another transplant when she is 25-35 years old. The Gilligans almost lost Allison at 18 months when she went into renal failure.Patrick Gilligan, who is a business development manager for VeCommerce, said a doctor at Massachusetts General Hospital said the odds of one family having three children afflicted with three separate genetic disorders was the equivalent of hitting Powerball twice. The odds of winning Powerball once are 1 in 146 million.”I should be so lucky to just hit Powerball once,” Patrick Gilligan quipped.The way the house is set up, Karlyn and Allison share one bedroom, Alexandra and Jackson another and the parents’ master bedroom is in the basement next to the washer and dryer, and there is not a complaint from anyone.Part of the back of the house has been removed because of mold growth and the family battles mold in the walls of the house which makes the risk for the children exponentially larger.Imagine how excited Patrick and Amy Gilligan were last summer when they learned they were one of five finalists in Massachusetts to appear on ABC’s “Extreme Makeover: Home Edition” show.”We wanted this so bad for the children,” Patrick said. “This was not about us receiving charity or getting a new, big house, it was about getting the kids something. It was about making things better for the kids and extending Karlyn’s life.”Patrick said his company, as well as the Bell School, where Amy works, have both been very understanding to their unique situation and have both been wonderful since Amy is normally at Mass General about once a week with one of the three children.On a tour of the house Patrick explained how difficult it is for Allison and Karlyn to share the same bedroom.”Karlyn is like a Petri dish that walks,” Patrick said. “She absorbs everything and Allison does not have the ability to fight off anything. When either of them is sick they have to be separated and one of them will end up taking over our bedroom downstairs.”According to the Cystic Fibrosis Foundation, cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States. A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.”What we were most excited about was the kids would get exactly what they needed,” Patrick said. “What Extreme Home Makeover would have been able to do was to bring in experts on autism, cystic fibrosis and kidney disease to create perfect spaces for the kids. It also would have created more space so all of the kids would have had their own bedrooms.”In addition to helping a family, Gilligan said he wanted to do the show to gain attention for autism, cystic fibrosis and kidney disease.Everything appeared to be heading in the right direction for the Gilligans last summer.Representatives from the show had met with the family on a couple of occasions and they had met with the children to have them design their perfect bedrooms and their perfect backyard.That all changed in February when the family
